Friday, August 14, 2009

A step in the right direction.

After several hours with Meg today, we saw no visible signs of seizure activity. The nurses last night also reported no activity, and unless we missed some (which is entirely possible) Meg has gone nearly 24 hours without a noted episode. Perhaps tomorrow may bring more disappointment, but Dr. Whitehair may be approaching the right combination of medications for Meg. Meanwhile, tests for different metabolic causes continue to return with normal results, a few each day. We received training for a sleep apnea monitor today, a machine that will beep if Meg has prolonged periods without breathing. We will use the monitor just as a safety net. Doctors will download and examine the records that this monitor stores and determine whether or not it is necessary beyond four weeks.

Today, Meg woke for nearly an hour and a half and checked out her surroundings. She seems to approve of her parents more each time she watches us, although our goofy gestures and faces and ridiculous noises only elicit yawns and grunts from the obviously embarassed child, a response that will only intesify as she gets to know us better. This was a wonderful day for all of us, and one which finds our spirits lifted. Drs. Denim and Whitehair both gave favorable reports following their respective examinations of Meg. Again, her health is quite impressive; now to stop those pesky seizures.

1 comment:

  1. So glad we got to see you all today. What a beautiful little girl!! Rosey cheeks & beautiful skin!!! It was great to smooch on her! luv ya all,
    Martha & Dave

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